Caregiving
Who are Caregivers?
A caregiver is a person, usually someone not formally trained in health care, who provides basic assistance and care for someone who is frail, disabled, or ill. Caregivers perform a wide variety of tasks to assist patients in their daily lives. The information in this pathfinder is prepared for people who are caring for a patient in any setting, including the home, a nursing facility, or a hospital.
Internet Resources
MedlinePlus: Caregivers
http://www.nlm.nih.gov/medlineplus/caregivers.html
Developed at the National Library of Medicine specifically for consumers, this site is a portal for both government-sponsored and privately developed health information for the lay public. This site offers very helpful information about coping and support during a difficult time.
Family Caregiving Alliance
http://www.caregiver.org/caregiver/jsp/home.jsp
Provides information, education, and advocacy to support individuals who are caring for loved ones with chronic health conditions and disabilities.
Books
- Caregiver’s path to compassionate decision making. Kind V. 2010
- The art of dementia care. Verity J. 2008
- My mother, your mother: The compassionate approach to caring for your aging loved ones. McCullough D. 2008
- Voices of caregiving: The healing companion: Stories for courage, comfort, and strength. 2008.
- When the man you love is ill: Doing the best for your partner without losing yourself. Lynn D. 2007
- Emotional survival guide for caregivers. Jacobs B. 2006
- The 36-hour day: A family guide to caring for persons with Alzheimer’s disease, related dementing illnesses, and memory loss in later life. Mace NL. 2006.
- If only I’d had this caregiving book. Hennessey M. 2006
- 100 questions and answers about caring for family or friends with cancer. Rose S. 2005
- Caregiving: A step-by-step resource for caring for the person with cancer at home. Houts P. 2003.
- Across the chasm: a caregiver’s story. Zikmund-Fisher N. 2002
- And thou shalt honor: The caregiver's companion. McLeod B., ed. 2002.
- Giving the best care. West J., ed. 2002.
- Stories of family caregiving: Reconsiderations of theory, literature, and life. Poirier S. 2002.
- The complete medical guide for the family caregiver: The authoritative, at-home companion for giving the best care. West, J., ed 2002
- Circles of care: How to set up quality home care for our elders. Cason A. 2001.
Journals
- “Coping with the stress of caregiving.” Harvard Mental Health Letter. 25(12):6. June 2009.
- “Care for the caregivers: how to find it.” Johns Hopkins Medical Letter, Health After 50. 20(7):4-5, 2008 Sep.
Videos
- Time to care: activities of daily living. 45 min.
- 10 essential tools of caregiving. 25 min.
- Caring for the caregiver. 25 min.
- Spiritual caregiving. 28 min.
Contact Us
For more information, please contact the Health Learning Center at 312-926-5465 or HLC@nmh.org.


