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Cutaneous T-cell Lymphoma (CTCL)

Lymphocytes are a type of white blood cell that help the body fight infection. One of the lymphocyte cancers is lymphoma, which is a solid tumor cancer of lymphocytes. Cutaneous T-cell lymphoma (CTCL) is composed of malignant T-cell lymphocytes that form tumors in the skin. The early stage of CTCL is mycosis fungoides, marked by skin tumors. When these malignant T-cell lymphocytes are found in the blood, this advanced stage of CTCL is called Sézary syndrome.


Internet Resources

Cancer.gov: Mycosis Fungoides
http://www.cancer.gov/cancertopics/pdq/treatment/mycosisfungoides/patient
Provides access to authoritative documents from the National Cancer Institute, including information about treatment, supportive care and clinical trials.

MedlinePlus: Lymphoma
http://www.nlm.nih.gov/medlineplus/lymphoma.html
Developed by the National Library of Medicine specifically for consumers, this site is a portal for trusted information from both government-sponsored and privately developed health information.

American Cancer Society: Lymphoma, Skin
http://www.cancer.org/Cancer/LymphomaoftheSkin/DetailedGuide/index
One of the most well-known organizations in the United States, ACS has trusted information and resources available to patients, families, and caregivers.

The Robert H. Lurie Comprehensive Cancer Center of Northwestern University at Northwestern Memorial Hospital
http://www.cancer.northwestern.edu/home/index.cfm
Contains information about the many services offered by the Lurie Cancer Center, one of thirteen founding members of the National Comprehensive Cancer Network (NCCN).


Books

  • Everything you need to know about cancer in language you can actually understand. Galsky MD. 2010
  • What to eat during cancer treatment: 100 great-tasting, family-friendly recipes to help you cope. Besser J et al. 2009
  • Clinical malignant hematology. Sekeres MA et al, ed. 2007
  • Cutaneous T-Cell Lymphoma: Mycosis fungoides and Sézary Syndrome. Zackheim, HS, ed. 2005
  • Cutaneous T-Cell Lymphoma: Gale Encyclopedia of Cancer. Longe J, ed. 2010. Available in print at the Health Learning Center or electronically at http://www.nmh.org/nm/health library virtual library.

Journal Articles

  • “Sezary syndrome: immunopathogenesis, literature review of therapeutic options, and recommendations for therapy by the United States Cutaneous Lymphoma Consortium (USCLC).” Olsen EA et al. Journal of the American Academy of Dermatology. 64(2):352-404. 2011 February.
  • “Update on treatment of cutaneous T-cell lymphoma.” Gardner JM et al. Current Opinion in Oncology. 21(2):131-7. 2009 March.

Support

Northwestern Memorial Hospital’s Health Learning Center has joined forces with the American Cancer Society’s Patient Navigator Program to provide assistance to patients and families dealing with cancer. To take advantage of this unique service, provided by a licensed clinical social worker, call 312-926-4282.

Leukemia & Lymphoma Society
http://www.lls.org/
The Leukemia & Lymphoma Society is dedicated to funding blood cancer research, education and patient services.

Cutaneous Lymphoma Foundation
http://www.clfoundation.org/
The Cutaneous Lymphoma Foundation is an independent, not-for-profit advocacy organization dedicated to supporting every person with cutaneous lymphoma by promoting awareness and education, advancing patient care and facilitating research.


Contact Us

For more information, please contact the Alberto Culver Health Learning Center at 312-926-5465, or e-mail us at HLC@nmh.org.

Last UpdateOctober 29, 2012
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