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 - Northwestern Memorial Hospital - Chicago

Scleroderma

Localized scleroderma is an autoimmune disease that affects the skin in limited areas and the musculoskeletal system. Systemic sclerosis causes more widespread skin changes and may be associated with internal organ damage, arthritis, gastrointestinal symptoms, and cold-induced Raynaud’s phenomenon.


Internet Resources

Medlineplus: Scleroderma
http://www.nlm.nih.gov/medlineplus/scleroderma.html
Developed and maintained by the National Library of Medicine for consumers, this portal site offers access to a wide array of resources concerning scleroderma.

Scleroderma: Handout on Health
http://www.niams.nih.gov/hi/topics/scleroderma/scleroderma.htm
Developed by the National Institute of Arthritis and Musculoskelatal and Skin Diseases to describe the different forms of scleroderma, this page provides information on symptoms, diagnosis, treatment, and current research.

Scleroderma
http://www.rheumatology.org/practice/clinical/patients/diseases_and_conditions/scleroderma.asp
The website of the American College of Rheumatology (ACR) offers information covering the more than 100 types of arthritis and related disabling and sometimes fatal disorders of the joints, muscles, and bones.

Northwestern Scleroderma Program
http://scleroderma.northwestern.edu/
The Northwestern Scleroderma Program is committed to providing state of the art patient care, conducting research toward a cure, and increasing awareness about scleroderma.


Books

  • Scleroderma book: a guide for patients and families. Mayes M. 2005
  • First year – scleroderma: a sourcebook for the newly diagnosed. Gottesman K. 2004

Models

The Health Learning Center has a large model of skin. Ask Service Desk staff for assistance.
To gain a better understanding of how the immune system works, visit one of the following sites:

Immune System and Disorders
http://www.nlm.nih.gov/medlineplus/immunesystemanddisorders.html

Understanding the Immune System from the National Cancer Institute
http://www.cancer.gov/cancertopics/understandingcancer/immunesystem


Journals

  • “Pathogenesis and therapeutic approaches for improved topical treatment in localized scleroderma and systemic sclerosis.” Badea I. Taylor M. Rosenberg A. Foldvari M. Rheumatology. March 2009. 48(3):213-21.
  • “Systemic sclerosis/scleroderma: a treatable multisystem disease.” Hinchcliff M. Varga J. American Family Physician. October 2008. 78(8):961-968.
  • “New Therapeutic Strategies in the Management of Systemic Sclerosis.” Expert Opinion on Pharmacotherapy. Allanore Y. April 2007. 8(5):607–615.
  • “Systemic and Localized Scleroderma.” Clinics in Dermatology. Chung L. September–October 2006. 24(5):374–392.

Support

Scleroderma Foundation
http://www.scleroderma.org
12 Kent Way #101 Byfield, MA 01922
800-722-Hope (722-4673)


Contact Us

For more information, please contact the  Health Learning Center  at 312-926-5465 or HLC@nmh.org.

Last UpdateDecember 2, 2011
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